Wednesday night, I was tired and cranky. I was ready for the kids to go to bed so I could relax. We had a busy morning visiting the fire station with friends and then to the mall to do some pre-Easter shopping and grab lunch. By 8:00pm, I was ready for some peace and quiet. We were all in the playroom, David, Elise, Ben and I. I was sitting on the floor looking at my phone, and David was watching the kids as they ran back and forth tackling each other to the ground and giggling.
Fire Station Crew! |
All of a sudden Ben was crying, and then he suddenly went silent, slumping over in my arms while his eyes rolled back into his head. His lips turned blue. Elise cried out, and David screamed Ben's name. I remember shaking his arm, thinking about the infant CPR and choking sheet I keep on the fridge, wondering if there was time to grab it, scooping him up towards me as he convulsed and his arms jerked and then crying out in happiness as Ben gasped loudly and started breathing again. The entire thing must have lasted a minute, but it felt like an eternity. Other than being a little frightened and not knowing what had happened, Ben was fine. He smiled and walked and talked like nothing had happened. David and I were not okay. We cried in relief. We hugged both kids tightly, and that night we prayed like we never had before.
Thinking about your mortality is a scary thought, but it is even more scary to imagine losing a child. Our week stopped, dead in its tracks. I watched Ben all night, sleeping next to him and reaching over to feel his little chest rise and fall, rejoicing in the little kicks and movements that are often annoyances when trying to share a bed with a toddler.
David went to work and then turned back around and came home, unable to concentrate. We started calling around. The guilt was worse the next morning when we were questioned by every single person we spoke to,"Why didn't you take him to the ER?!" Going by gut instinct apparently isn't something you should do as a parent anymore, you should be shamed into doing what others want. That's a whole other post though! Thursday passed quickly encompassed by prayer and support from friends and family, calls to doctors and neurologists. Watching and flinching anytime Ben cried out or fell, we were emotionally done.
We finally got an appointment on Friday with a neurologist in Tampa, not local to us, but who my sister uses for her epilepsy. We were hoping to get some answers for what this scary incident meant - seizures? minor concussion?
EEG "Helmet" as the nurse called it. |
After a 3 hour drive, restless sleep, an early wake up, and finally a 20 min EEG we were given great news - a normal reading. The doctor explained that it sounded like Ben had a breath holding spell. (Why couldn't the after-hours nurse figure that out?!) Basically, he exhaled all his air without inhaling and passed out. The spells are a reflex to pain or fear, and something that happens to young toddlers. So, it could happen again, but (if there is a) next time we will know what it is!
Post-EEG hair - super crazy from all the sticky stuff left in his hair! |
Overall, I'm so grateful that everything is okay. It was a scary process we've endured these past few days; I can't imagine what parents with terminally ill kids go through on a daily basis! I know we are lucky. We are not totally in the clear; we will always watch our kids more closely than most for signs of seizures. However, our family came together, and all of the miniscule and unimportant things faded. This morning, we snuggled in our bed with our kids and thanked God for his grace and mercy.